Living Dizzy with Meniere's Disease
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I'm sure you've been told more than once that you are dizzy....most of us have. Never mind the blond hair thing, I know I've been told I'm dizzy at times. The sorry thing is I am! Not because of my blond hair but because of my Meniere's Disease. I wasn't born with it and didn't really have it till I was in my forties (no comments about age please). While it is a serious disease with serious consequences for many, I have been lucky and guess I have what could be called a mild case though dizziness is no joke. For some the Meniere's Disease diagnosis is an end to a normal life.
What is Meniere's Disease is an inner ear disorder that affects balance and hearing. It could be called an inner ear disease since this is where it originates. To date my hearing loss has been so limited as to be attributed to my age. (There's that age thing again!) Whether we like it or not as we age we lose the ability to hear certain high pitched sounds. If you want to check this 'ability' click here or ask your kids, I'm sure they have an app for that! So my hearing loss is minimal and though I have it checked regularly it hasn't deteriorated past what is normal for my age.
Another effect of this disease is tinnitus. This is a ringing in the ears. Very annoying and can drive you crazy. Of course tinnitus can be caused by other things but also can accompany Meniere's. Again, I am lucky. Mine is very sporadic and I live without it more than with it, thankfully.
But what about the dizziness? Ah yes, since Meniere's is an ear disorder it affects balance as well as hearing. I never know for sure when I will get a Meniere's attack but I have noticed weather plays a part. I am more accurate than your local meteorologist. I can tell when a weather change is coming by the pressure in my ears often accompanied by a real dizziness attack. Sometimes it is so bad I have to lie in bed. I have found that I also sleep a lot when I am having a Meniere's attack making me wonder what really made Sleeping Beauty sleep! The doctor says it is my body's way of dealing with the dizziness.
However, what happens when I'm not at home and I get an attack? I can usually feel it coming on so if I'm not too far from home I get a chance to get home but when I was working it was not always that easy. I was once at a computer conference in Long Island when an attack came on. I couldn't not go to the conference since I was already there. Fortunately there were several people from work with me and they did all they could to help me out. When it first hit we were walking to a presentation. One person stood on one side of me and one person on the other so that if I lost my balance I wouldn't fall. I told them not to worry I was a weeble and weebles wobble but they don't fall down.
As we entered the elevator, to get me to my room, I was pretty dizzy. I was swaying and looking rather drunk though I hadn't touched a drop. However, the lady in the elevator with us kept giving me dirty looks thinking wow, this one's got a load on and it's only 8:00 p.m. I was able to sleep for a short time and the attack went away.
While I am making light of this whole situation it really is nothing to joke about. As I said earlier, I am lucky and have a mild case. I can still function though many times we hesitate to make vacation plans not knowing if I will have to sleep the whole time we are gone or not. Actually, the longest I have slept with an attack is three days. Usually 24 hours will do the trick.
There are people who are so severely plagued with this disease they have to give up their jobs and cannot drive a car. I have had times when I couldn't drive but again was fortunate enough to have someone around who could drive me.
The worst part is there is no cure for Meniere's since no one knows the reason you get it in the first place. Suggestions for coping with it include a low salt diet, diuretic or motion sickness pills when you are having an attack, avoid strobe lights and going around in circles (I know we all do at times but mostly I mean as in carnival rides). These are my suggestions gleaned from the time I've had the disease. You can find more information about Meniere's at the home page for the disease Menieresinfo.com
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Meniere's Disease : What you need to know, P. J. Haybach, Jerry Underwood, Accep
Current Bid: $24.33
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Meniere's Disease : What you need to know, P. J. Haybach, Paperback
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Meniere's Disease: Evidence and Outcomes
Current Bid: $168.35
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tillsontitan meniere's can also be brought on by a blow to the head. You are a lucky one. I have a form of meniere's which has me at times totally deaf. I am wheelchair bound because the episodes come on at any time and I still fall (wheelchair and all) about once a month. In my case a fall while I was still walking crushed three disc's so I am wheelchair bound for life. It took over a year to learn to drive with meniere's. Luckily I always spin in one direction so can control a vehicle long enough to get off the road. To this day my salt intake from all forms is maintained at a very low level. Being human there are both days when this is messed up from my mistakes and from mislabeled products. There is an operation which will stop menieres and in discussions with doctors it was decided not to go forward in my case. With the crushed disc's there really wasn't a need.
Interesting information which will help people understand how we with menieres live SHARING so those who I deal with will understand how I live.
I'm one of the 'severely plagued'. I've had Meniere's since childhood and am heading for the 'worst case scenario' of bilateral deafness et cetera.
Since there's so little out there to help us I have set up a social network for people with Meniere's, Tinnitus and other similar disorders.
www.menieresworld.com
Everyone's welcome.
Thank you ;)












Nell Rose Level 8 Commenter 4 months ago
Hi, I can totally understand what you mean, my mum had it! she was deafened slightly in her ear when she had an op for nasal trouble and then she developed menieres, and of course tinnitus, I remember her always saying about dizziness, and it also made her fall asleep in the chair for a while, the dizziness usually affected her when we went out, nightmare! I often had to guide her to a seat until it went off, but the tinnitus drove her mad, constantly whining in her ear. I couldn't resist your link to the sound page, I fell into the cliche' section! lol 14. something, that says you won't hear anymore over 20 years old. showing my age too!